What happened next
As you can imagine, we desperately wanted to get a another opinion. A friend of ours suggested we went to a hospital in Turin, Italy and so, we did.
On August 2019 we arrived at the Obstetrics and Gynaecology Hospital Sant’Anna.
There we were told that after the birth we could correct the defect, thought that made us very happy because Ionela’s insurance would then cover the procedure.
Where does that leave Daria now
We have received the biopsy and MRI scan results (for her liver) and it has been confirmed that she suffers from sclerosant cholangitis – a rare chronic disease that slowly damages the bile ducts.
The treatment for sclerosant cholangitis is a difficult one. Because the mechanism and process behind the disease is not yet fully understood, it is very hard to identify the most appropriate therapeutic approaches.
As of today, a liver transplant is the only chance she has to live.
P.S. I’m sorry I have to give you this piece of news and potentially make you sad. We are trying to stay positive despite being devastated. We strongly believe that God has a plan for Daria and we most certainly won’t stop praying.
P.S.2 Thank you again for your all your support and if you need further details or wish to contact us, do not hesitate to write or call.
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